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2024年01月12日
养育自闭症孩子你应该知道的事帕蒂·曼宁-考特尼
鼓舞人心的演讲:TEDx Worldwide 的新见解
患有自闭症、唐氏综合症和脑瘫的儿童被要求对三岁的双胞胎男孩进行评估。 他们有着明亮的蓝眼睛和草莓色的头发,但他们看起来非常相似,以至于他们的母亲给他们穿上了印有他们名字的T恤。 他们的父母不像其他同龄孩子那样说话,所以他们不感兴趣。 家长现在更多地了解孩子的发展和孩子的需求。
Twenty years ago, I was a relatively young developmental pediatrician.

What you should know about raising an autistic child | Patty Manning-Courtney

Twenty years ago, I was a relatively young developmental pediatrician.

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  Twenty years ago, I was a relatively( 相对地) young developmental( 发展的) pediatrician. That's a pediatrician that specializes(成为…专家) in seeing children with a variety of different developmental( 发展的) disabilities(残疾). Children with autism, down syndrome([临床] 综合症状), intellectual(智力的) disability(残疾), cerebral(脑的) palsy. I was asked to evaluate(评价) three-year-old twin boys. They had bright blue eyes and strawberry blonde hair. And they looked so similar that I was grateful that their mother had dressed them in t-shirts with their names on them.
  Their parents were young and nervous. The boys weren't talking like other children their age. Something that was becoming even more obvious to the parents as their younger son was developing in some ways surpassing(超越) his older twin brothers. I saw the boys and I noted that they were both pretty agile(敏捷的). They used very few words. And they were pretty efficient(效率高的) at getting their needs met, getting things for themselves without requesting any help from adults.
  I asked the parents many questions, including how easy is it for you to get their attention, to which the mother responded, "It's not easy." There were ducks swimming on our pool the other day and I was jumping up and down and pointing and directing the boys to look out the window. But they weren't interested. I referred the boys for some additional(附加的) evaluations( 评价). Speech language testing, developmental assessments(评估), and testing specific for the possibility of the diagnosis(诊断) of autism. When our evaluations were completed, I met with the parents who were joined by the grandfather to share what we'd found(找到).
  I told them all the information we've gathered and the testing we've done and what you've told us indicates that both of your boys have autism. Before I could proceed(开始), the grandfather stopped me and asked, "How can you be so calm? You've just diagnosed(诊断) both of my grandsons with autism." His questions stopped me in my tracks, but I managed to respond, "Because I know it's going to be okay. You are all here together, supporting each other, ready to get the boys started in therapy(治疗). I know it's going to be okay." If I'm being honest, I didn't really know for certain things would be okay. And I wasn't even sure what okay(好) was back then. But it's what I felt compelled(强迫) to say in the moment in response to that question.
  And I believed it. I believed that they were going to be okay. As a developmental pediatrician practicing for over 25 years, I've communicated messages like that to families thousands of times. I've seen a wide range of responses, tears( 眼泪), anger(怒), fear, denial(否认), relief(减轻) at confirmation(确认) that their concerns(关心) were validated after being reassured by well-intentioned friends and family members that everything's fine. I've seen fathers jump to what this means 20 years from now and mothers focus on the next day, the next hour. Many parents have told me they don't remember a thing I said after sharing a diagnosis.
  Regardless(不顾一切地) of their reaction, I've worked(使工作) hard to make(使) sure parents can stand back up and move forward, reminding them that their child is still perfect, but there's some things we need to do. Over the years, I've learned what I didn't really know when I was talking to the family of those twins, which is what it means to be okay. The thousands of patients and their families that I've worked with over the decades in between have taught me that lesson, what it means to be okay for them, their child, and even for me. So that's what I'm here to talk to you about today. I'm here to tell you that it's going to be okay. The child's going to be okay.
  The family's going to be okay. And yes, even I'm going to be okay. Let's start with the child. One of the many wonderful things about being a developmental pediatrician is getting to see children progress(前进) over time. Barring(禁止) rare unusual conditions, all children progress, but their rates of progress may vary(改变) and come in fits(合身) and spurts. Expecting children to progress, to gain(获得) new skills and to manage their behavior contributes(捐献) greatly(大大地) to their progress.
  If we don't expect them to progress, how can they? Children control three major areas that significantly(意味深长地) impact families. When they sleep, what they eat, and when and how they use the bathroom. One of the things I've told my patients' families is to maintain(维持) their expectations(期待) that their children will make(使) progress in these areas. They will learn to sleep through the night. They will eat a wider range of foods, and they will learn to use the potty.
  At the same time, parents and caregivers were teaching me about how they came to maintain those expectations, including the mother who said, "I don't treat him any different than any of my other kids." Or the mother whose young adult son often said, "But I have autism," in response to things he didn't think he could do. To which she responded, "I don't care." My patients have taught me a tremendous(极大的) amount about the prejudice(偏见) of low expectations(期待), sometimes referred to as the soft bigotry of low expectations. This can apply to many groups, but it definitely applies to people with disabilities. If we don't expect someone to accomplish(完成) something, the likelihood(可能性) that they won't is pretty high.
  I have many patients that communicate using a keyboard, typing things they wish to express. Some of my patients are a little particular about who they will communicate with in this way. I asked one of my patients, "What helps him communicate with certain people?" And he typed, "It's the feeling that they believe in me."

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重点单词:

C2
agile:adj.敏捷的;机敏的;活泼的
C1
cerebral:adj.脑的, 大脑的
grief:noun.悲痛;忧伤;不幸
coordinator:noun. 协调者
appreciation:noun.欣赏,鉴别;增值;感谢
diagnose:verb.诊断;断定
confirmation:noun.确认;证实;证明;批准
validate:verb.[律]使有效, 使生效, 确认, 证实, 验证
remedy:noun.治疗;补救
elaborate:adj.精心制作的, 详细阐述的, 精细
disintegrate:verb.(使)分解, (使)碎裂
syndrome:noun.[临床] 综合症状;并发症状;校验子;并发位
diagnosis:noun.诊断
compel:verb.强迫, 迫使
reassure:verb.使…安心,使消除疑虑
bait:verb. 逗弄; 激怒
tremendous:adj.极大的, 巨大的
supervision:noun.监督,管理
recount:verb.叙述
bluntly:adv.坦率地, 率直地
denial:noun.否认;拒绝;节制;背弃
regardless:adv.不顾一切地
prejudice:noun.偏见;侵害
competence:noun.能力,胜任;权限;作证能力;足以过舒适生活的收入
intervention:noun.干涉
Cincinnati:noun.辛辛那提(美国俄亥俄州西南部城市)
stave:verb.延缓;击穿;凿孔于;压扁
developmental:adj. 发展的
obsession:noun.迷住, 困扰
disruptive:adj. 制造混乱的
accomplishment:noun.成就;完成;技艺,技能
physician:noun.医生,内科医生
countless:adj.无数的;数不尽的
coincide:verb.一致, 符合
insistent:adj.坚持的;迫切的;显著的;引人注目的;紧急的
surpass:verb.超越;胜过,优于;非…所能办到或理解
fit:noun.合身;发作;痉挛
likelihood:noun.可能性,可能
uncharted:adj.海图上未标明的, 未知的, 不详的
chronic:adj. 慢性的, 长期的
rotate:verb.旋转;循环
invisible:adj.看不见的,无形的
operational:adj.操作上的;可使用的
专辑
鼓舞人心的演讲:TEDx Worldwide 的新见解
难度
B2
词汇量
653/2720
摘要
患有自闭症、唐氏综合症和脑瘫的儿童被要求对三岁的双胞胎男孩进行评估。 他们有着明亮的蓝眼睛和草莓色的头发,但他们看起来非常相似,以至于他们的母亲给他们穿上了印有他们名字的T恤。 他们的父母不像其他同龄孩子那样说话,所以他们不感兴趣。 家长现在更多地了解孩子的发展和孩子的需求。
第1句的重点词汇:
1. relatively

B2

adv. 相对地; 相关地
语法:副词young修饰的副词
2. developmental

C1

adj. 发展的
语法:修饰名词或代词pediatrician的形容词

托福